Coping with Chronic Illness and Disability - Theoretical, Empirical, and Clinical Aspects

Contents

Foreword

References

Preface

Stress Related to Chronic Illness and Disability

The Battle with Oneself

The Battle with Environmental Influences

Coping with CID

Contents of the Book

A Note about CID and Employment

References

Acknowledgments

About the Contributors

An Introduction to Coping Theory and Research

Definitions

Chronic Illness

Disability

Stress

The Nature of Coping Definitions

Coping: A Historical Overview

The Functions of Coping

The Structure of Coping

Coping Resources

Adaptive vs. Non-Adaptive Coping

The Temporality Aspects of Coping

The Measurement of Coping

Coping: Tentative Conclusions

Summary

References

Psychodynamic and Cognitive Theories of Coping

Haan’s Model of Coping, Defense, and Fragmentation The Ego Processes: Coping, Defense, and Fragmentation

The Haan vs. Freudian Model of Ego Functioning

The Tripartite Model

Evaluation of Haan’s Model

Lazarus and Folkman’s Theory of Coping

Coping, Emotion, and Appraisal

Coping Styles

Transaction and Variability

The Person-Environment Fit

Toward a Better Understanding of Cognition in Coping

Evaluation’s of Lazarus and Folkman’s Model

Conclusions

References

Hierarchical Coping: A Conceptual Framework for Understanding Coping Within the Context of Chronic Illness and Disability

Theoretical and Historical Background Macroanalytic Orientation

Microanalytic Orientation

Empirical Findings Macroanalytic Models

Microanalytic Models

Coping within the Context of Chronic Illness and Disability

Conclusion

References

The Social Context of Coping

Social Coping with Chronic Illness and Disability

Theoretical and Historical Background of the Social Context of Coping

General Social Models of Coping

Coping with CID in the Context of Work and Family

Employment Context of Coping with CID

Coping with CID in the Family Context

Conclusion

References

Reauthoring the Self: Chronic Sorrow and Posttraumatic Stress Following the Onset of CID

The Self-Narrative and its Disruption

Chronic Sorrow

Adaptation to CID as a Trauma Response

Suicide and Associated Problems

Case Illustration

Conclusion

References

Adaptive Tasks and Methods of Coping with Illness and Disability

Historical and Theoretical Background

Crisis Theory

A Biopsychosocial Perspective

Coping Resources and Processes

An Integrative Conceptual Framework

Personal Resources

Health-Related Factors

Social and Physical Context

Cognitive Appraisal and Adaptive Tasks Cognitive Appraisal

Adaptive Tasks

Coping Skills

Eight Categories of Coping Skills

Health-Related Outcomes

Approach vs. Avoidance

Coping as a Mediator

Task-Coping Match

Crisis Growth

Future Directions

Mental-Health Disorders and Coping with Medical Problems

The Context of Health-Care

Mutual Help Groups and Communal Coping

Conclusion

References

Coping with AIDS: The Challenges of an Evolving Disease

Introduction

Incidence and Prevalence of HIV/AIDS

Testing

Treatment

Coping with HIV Depression, Distress, and Coping with HIV

The Challenges of Conducting Research on Coping

Types of Coping in Individuals with HIV

Coping and Stress

Coping and Social Support

Physical and Psychosocial/Behavioral Interventions to Increase Coping Treating Depression

Interventions to Improve Coping in Individuals with HIV

Vocational and Social Implications

Conclusions

References

Coping with Arthritis: From Vulnerability to Resilience

Major Types of Arthritis

Biopsychosocial Approach to Arthritis

Research on Coping with Arthritis

Coping Measures

Predictors of Coping

Coping Styles and Outcomes

Coping Strategies and Outcomes

Research on Interventions for Coping

Implications of Coping and Interventions

Limitations and Future Directions

Summary and Conclusion

References

Coping with Burn Injury: Research Summary and a New Model of the Influence of Coping on Psychological Complications

Physical Complications Associated with Burn Injury

Psychological Aspects Associated with Burn Injury

Coping with Burns: Predicting and Controlling Psychological Distress Risk Factors and Moderators of Outcomes

Etiology and Maintenance of Psychological Distress

Psychological Interventions

A New Coping and Motivation Model of Distress Etiology

Motivation and Coping Model: Empirical Support

Summary

References

Coping with Cancer: Findings of Research and Intervention Studies

Medical Treatments for Cancer

Coping with Cancer

Associations between Coping and Psychological Outcomes across the Cancer Continuum

Psychological Interventions to Improve Coping with Cancer

Breast Cancer: Treatment Phase

Early Stage Breast Cancer: Survivorship

Gynecologic Cancer

Melanoma

Prostate Cancer

Mixed Tumor Sites

Empirical Issues and Challenges for the Field

Implications of Research

Summary

References

Coping with Diabetes: Psychological Determinants of Diabetes Outcomes

Introduction

Medical Aspects of Diabetes The Epidemiology and Burden of Diabetes

Diabetes Etiology and Prevention

Long-Term Complications of Diabetes

Treatment of Diabetes and Prevention of its Complications

Diabetes Self-Management

Short-Term Complications

Stress and Coping in Diabetes Sources of Diabetes- Related Stress

Stress and Glycemic Control

Coping with Diabetes Measurement Challenges

Additional Psychological Determinants of Diabetes Outcomes: Personality, Illness Appraisals, and Psychiatric Disorders

Interventions

Stress & Coping Interventions

Self-Efficacy Interventions

Interventions for Psychiatric Disorders

Summary and Implications

References

Coping with Epilepsy: Research and Interventions

Overview: Incidence, Prevalence, and Etiology

Incidence and Prevalence of Epilepsy

Etiology

Seizure Classification and Treatment Classification of Seizures and Syndromes

Treatment of Epilepsy

The Psychosocial Impact of Epilepsy

Epilepsy, Depression, and Anxiety

Epilepsy and Quality of Life

Coping with Epilepsy: Overview and Research

Interventions that Promote Effective Coping

Psychotherapeutic Approaches

Psychoeducational Programs and Interventions

Assistive and Rehabilitation Technology and Environmental Interventions that Promote Coping

Seizure-Response Dogs

Conclusion

References

Coping and Heart Disease: Implications for Prevention and Treatment

What Is Cardiovascular Disease?

The Incidence, Prevalence, and Impact of Cardiovascular Disease

Risk Factors for Cardiovascular Disease

Treatments for Cardiovascular Disease

Coping with Heart Disease

Coping Strategies Used by Individuals with Cardiovascular Disease

Coping and the Development of CHD

Coping and Psychosocial Outcomes

Coping and Health-Related Outcomes

Gender and Cultural Differences in Coping

Interventions to Promote Coping Behavior

Cardiac Rehabilitation

Large-Scale Intervention Studies

Summary of Intervention Studies

Vocational and Social Implications of Treating Heart Disease

Conclusion

References

Coping with Multiple Sclerosis: Considerations and Interventions

Description

Etiology

Characteristics and Symptoms

Neuropsychological Features

Cognitive Dysfunction

Affective Disorders

Disease Course

Diagnosis

Medical Management

Treating the Underlying Disease

Symptomatic and Supportive Therapies

Coping with Multiple Sclerosis Psychosocial Impact

Coping Research about Multiple Sclerosis

Physical and Psychosocial/Behavioral Interventions

Physical Barrier Removal

Psychosocial/Behavioral Interventions

Vocational Implications for Individuals with MS

Vocational Implications for Professionals

Conclusion

References

Coping with Chronic Pain: A Stress- Appraisal Coping Model

What Is Chronic Pain? Defining Chronic Pain

Theories of Pain

Pain “Memories” and Their Contribution to Chronic Pain

Biomedical Approaches to Treating Chronic Pain

Coping with Chronic Pain Pain and Disability

Pain as a Stressor

Primary Appraisals

Secondary Appraisals

Coping

Interventions to Promote Coping with Pain From a Curative Approach for Pain to a Pain Self- Management Approach

Cognitive-Behavioral Therapy to Promote Pain Self- Management

What are the Important Components of CBT?

Cognitive Components of CBT

Cognitive Coping Strategies

Enhancing Behavioral Coping Strategies

Implications and Future Directions

Summary

References

Coping with Severe Mental Illness: A Multifaceted Approach

Overview of Severe Mental Illness Coping within the Context of Severe Mental Illness

Definitions of Severe Mental Illness

Coping with a Label or Diagnosis

A Multifaceted Approach to Coping with Severe Mental Illness

Ways of Coping with the Problems and Challenges of SMI

Coping with the Problems and Challenges of SMI

The Context of Coping with the Problems and Challenges of SMI

Social Support Interventions

Implications of the Multifaceted Model of Coping with SMI for Research, Assessment, Intervention, and Recovery Researching the Substance and Structure of Coping with SMI

Developing and Assessing Coping-Focused Interventions for SMI

Coping Interventions and Evidence-Based Practices

Coping and Recovery

Illustrating the Model Using Schizophrenia as a Prototypical Severe Mental Illness

Coping with SMI: Summary and Conclusions

References

Coping with Spinal Cord Injuries: Wholeness Is a State of Mind

Etiology

Incidence and Prevalence

Medical Regimen Acute Phase

Post-Acute Phase

Mental Health Issues

Coping with a Spinal Cord Injury

The Structure of Coping with SCI

Descriptive/Longitudinal Studies on SCI

Predictive Studies of Coping with SCI

Coping Strategies Used by Individuals with SCI Engagement Strategies in Response to SCI

Disengagement Strategies in Response to SCI

Coping with Secondary Complications

Summary on Coping Strategies

Physical and Psychosocial/Behavioral Interventions to Promote Coping. Environmental Interventions

Psychosocial Interventions

Vocational and Social Implications

Conclusion

References

Coping with Traumatic Brain Injury: Existential Challenges and Managing Hope

Introduction

TBI Prevalence, Etiology, and Demographics

TBI Presentation and Course

Coping and Traumatic Brain Injury

TBI as an Existential Crisis

Challenges of Coping with TBI

TBI and Psychosocial Outcome: The Scope of the Problem

Emotional/Psychological Disruption and TBI

Coping Strategies and TBI

TBI and Self-Awareness

Vocational Reintegration after TBI

Promoting Coping after TBI

Family and Social Support

Discussion and Summary

References

Appendix of Commonly

Used Coping Instruments

References

Index